LOCAL WOMAN TELLS HER STORY OF GRIEF TURNED TO HOPE
Scotty Sell was born 11 years ago this April. His mom, Rita knew he was different—special—but he was repeatedly misdiagnosed in his earliest years—in fact, up until he was 7 years old. Doctors in Buffalo didn’t know what they didn’t know…and they knew little about Angelman Syndrome. Instead of bemoaning the fact that no medical professionals caught this sooner, Rita Sell is on a mission to promote recognition and understanding of this genetic disorder.
This Friday, February 15th, has been named as International Angelman Day to raise awareness of Angelman Syndrome, (AS) a severe neurological disorder characterized by profound developmental delays, problems with motor coordination (ataxia) and balance, and epilepsy.